Condition: Kidney and bladder issues; Status epilepticus
City, State: Medford, OR
Club: Wilson Elementary School Sparrow Club Service Hours: 256
Date Adopted: 11/13/2017
Skyra is a sweet little girl who, according to her family, is growing up way too fast. She was registered for kindergarten in the fall of 2017, and is enjoying her very first year as a first-time student. Like her peers, she is welcoming all the new experiences and challenges that go along with kindergarten adventures. However, Skyra has some added challenges she faces every day.
When Skyra was 3-months-old she had a scary incident that sent her to the hospital, and eventually led doctors to discover some conditions this little girl would be faced with. One afternoon, without warning, Skyra turned blue. Her family rushed her into the emergency room and held their breath until answers came.
It was discovered that Skyra had a birth defect on her ureters that was causing kidney and bladder failure. This discovery jump started Skyra’s family into a two-year travel routine up to Portland. Skyra was admitted into many in-depth examinations called voiding cystourethrograms (VCUG). VCUG is an x-ray of a child’s bladder urinary tract. Skyra underwent ten VCUG’s during just those two years, until it was discovered that her body had grown out of this infant defect. This was welcoming news to her family, but given with caution, as it came with the possibility that she could relapse, causing her to require a kidney transplant.
As if that were not enough, at two-years-old Skyra experienced a seizure, leading doctors to eventually diagnose her with epilepsy. There are various forms of epilepsy, and given the severity of her seizures, doctors are testing Skyra for possible “status epilepticus.”
Status epilepticus is very scary and very dangerous. It is a single seizure lasts too long or when seizures occur close together and the person doesn’t recover between them. In Skyra’s case, her seizures can last an astounding 30 minutes.
Along with these two life-altering conditions, Skyra has also been diagnosed with autism, a sensory processing disorder, articulatic disorder, and various other challenges.
According to her family, Skyra has her good days and her bad days. On her good days, you can find her dancing and singing along to music. She is a fan of “One Direction,” and loves the song, “You Don’t Know You’re Beautiful.” This is quite fitting for this precious child who faces so many challenges, but does so with a bright, beautiful smile.
Skyra will be adopted as a Sparrow to Wilson Elementary School. Students of Wilson Elementary want to work hard to raise money for Skyra through sponsored community service and fundraising projects.
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