William is a 5-year-old boy who attends kindergarten at Kennedy Elementary School. He loves Spider-Man, building forts, and reading.
In February 2020, at only 20-months-old, William was diagnosed with Duchenne Muscular Dystrophy (DMD)
In most cases, DMD is not detected at such an early age, however, William was lucky in the sense that doctors discovered this so early.
DMD is a rare and genetic muscle-wasting disease that affects mainly boys and ultimately robs them of reaching adulthood. This disease is caused by an alteration of a protein called dystrophin. Dystrophin’s sole purpose is to maintain and regenerate muscle growth. William’s body does not do that.
This disease will soon impact William’s ability to walk and eventually affect his heart and lungs.
DMD is ultimately a life-threatening condition and there is no cure currently for this disease.
William seems to be a typical healthy boy at first glance; however, he has already endured quite the medical journey and visits specialists often.
William’s family has made it their life’s mission to aid science in finding a cure for this horrible disease. While on that crusade, it has been very important for them to enjoy life and live in the moment. They are determined to win this battle.
William will be adopted as the Sparrow to McLoughlin Middle School. MAC students will work hard to earn money for William through sponsored community service.