Dancing with the Rogue Valley Stars, 2024!

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Name:
Hazel
Club:
Condition:
Nonketotic Hyperglycinemia
Club's City, State:
Cle Elum, WA
Service Hours:
Date Adopted:
01/14/2022
Website:

Meet Hazel

Read Hazel's Story

Hazel is a joy-filled, non-verbal, sweet, and energetic 4-year-old little girl.
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nHazel was born with a very rare genetic condition that affects every part of her body (nonketotic hyperglycinemia).
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nGlycine is a molecule in our bodies that helps make proteins that our bodies need to work how they are supposed to work.
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nHazel has too much glycine in her body. Instead of helping her body work, this glycine builds up and damages her organs and tissues.
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nThis condition causes Hazel to have stiff muscles, vision problems, a history of seizures, and developmental and physical delays.
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nThere is no cure for this condition and Hazel will live with this her whole life. However, Hazel doesn’t let this keep her from being full of joy and happiness!
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nHazel loves her little brother, Russell, who was also born with the same genetic condition.
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nHazel will be adopted as a Sparrow to schools in the Cle Elum-Roslyn school district. Students will work hard to complete service hours in honor of the funds donated by our Club Sponsor.
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