Dancing with the Rogue Valley Stars, 2024!

Caldera High School
Perisylvian Polymicrogyria (BPP)
Club's City, State:
Bend, OR
Service Hours:
Date Adopted:

Meet Karson

Read Karson's Story

Karson is a precious little 8-month-old baby girl. Her mom had a typical pregnancy. She was very healthy as fitness and bodybuilding were a part of her lifestyle.

When Karson was born everything seemed fine until two hours later when she stopped breathing. She turned blue and was rushed to the NICU.

Testing was done and they realized Karson was having seizures. She was then Life-Flighted to OHSU in Portland and was there for six weeks.

MRIs and genetic testing were done along with many other tests to figure out why she was still having seizures.

Karson was diagnosed with bilateral Perisylvian Polymicrogyria (BPP), which is a rare neurological disorder that affects the outer surface of the brain. BPP is a subtype of a broader condition known as Polymicrogyria (PMG).

Polymicrogyria is a condition characterized by abnormal development of the brain before birth. In people with polymicrogyria, the brain develops too many folds, and the folds are unusually small.

Karson was recently diagnosed with Dystonia, which results in uncontrolled muscle movements.

Karson is delayed in her growth milestones.

Karson has been air-lifted two other times for her extreme seizure activity. Her parents don’t know what the future holds for her.

Her eyesight has been affected and she will most likely need to get infant eyeglasses soon.

Karson is typically a happy baby. She just started laughing and smiling regularly. She loves their two dogs – a yellow lab, and a golden retriever.

Karson will be adopted as a Sparrow to Caldera High School. Caldera students will work hard to raise money for Karson through sponsored community service.