Payton R.

Condition: Synovial Sarcoma
City, State: Redmond, OR
Club: Redmond High School Sparrow Club Service Hours: 162
Date Adopted: 2/03/2020

Payton's Story:

• Payton is an active teenage girl who is involved in sports. During her last softball season, she began to experience nerve pain on the right side of her neck and shoulder. She thought the pain was sports related.

• During a family camping trip on July 4th, 2019, she noticed there was a bump on her neck. Payton’s mom took her to the doctor as soon as they returned from their vacation.

• The initial doctor visit turned into weeks of tests and scans, and Payton was ultimately referred up to OHSU in Portland for diagnosis.

• An OHSU specialist was confident that Payton's mass was a common benign tumor of the tissue that covers nerves called a schwannoma. A surgery was scheduled for Sept. 11th.

• During surgery it became very apparent to the surgeon that this wasn't a typical schwannoma. The tumor was entangled in her brachial plexus, which is a major network of nerves extending from the spinal cord to the arm. They were only able to successfully remove 80 - 85% of tumor without risking permanent nerve damage.

• Devastating biopsy results arrived a week later with the official diagnosis of Synovial Sarcoma. A rare cancerous soft tissue tumor that affects less than 3 in one million people. It's most common in young adults and teens.

• Payton began chemo treatment on Oct. 11th with 7 total rounds scheduled. Her first radiation treatment was Dec. 10th and will continue 5 days a week for 7-8 weeks.

• The location of Payton's tumor makes her road to recovery tricky. The hope is that chemo and radiation will kill the tumor. If treatment is unsuccessful, there is a very grim possibility of another surgery to remove the remaining tumor. Surgery could result in the complete paralysis and loss of function to her right arm.

• Payton is a talented athlete who excels at soccer and softball. She enjoys spending time with her friends. She likes to be outdoors, especially in the summer when she can be swimming, hiking and camping with family and friends.

• Payton will be adopted as a Sparrow to Redmond High School. Students will have the opportunity to work hard to raise money for Payton’s ongoing treatment through sponsored community service.


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