Patrick E.

Condition: Angelman Syndrome
City, State: Bend, OR
Club: Bend High School Sparrow Club Service Hours:
Date Adopted: 12/19/2014

Patrick's Story:

With Patrick’s contagious happy demeanor and smile, it’s hard to tell that this little boy is battling an extremely rare neuro-genetic disorder called Angelman Syndrome. This disease is characterized by severe intellectual and developmental disabilities, sleep disturbance, seizures, jerky movements, along with, frequent laughter or smiling.

Patrick was the first infant diagnosed with Angelman and it was determined he was born with it after numerous tests were conducted. He spent the first three months of his life in the Neonatal Intensive Care Unit at St. Charles Hospital in Bend, as he wasn’t able to do most instinctive things, such as, breathing, alone.

Patrick had a feeding tube surgery in June because he does not have the instinct to swallow. He now feeds every 6 hours for 45 minutes. Although the feeding tube surgery was necessary, it triggered seizures that are an side effect of Angelman’s. He is on medication to help reduce the frequency of the seizures. Patrick will need another surgery for his stomach that will reduce vomiting.

Although Patrick’s life has been a tough one, he is a beautiful, blue eyed little boy who loves life and making others smile. He enjoys listening to music and looking through books.

Patrick will be adopted as a Sparrow. Students will work hard to raise money for Patrick through sponsored community service and fundraising projects.


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