Condition: Congential Heart Defect
City, State: Ellensburg, WA
Club: Kittitas Secondary School Sparrow Club Service Hours:
Date Adopted: 1/30/2014
Odin was born on October 1, 2013. His delivery went well, and his parents were elated. Six short hours later, nurses caring for him noticed that his color was becoming muddled and blue, and his body temperature was low. Odin and his mother were immediately flown to the Seattle Children’s Hospital Cardiac ICU.
Odin had been born with a rare congenital heart disease called Pulmonary Atresia with an Intact Ventricular Septum and hypoplastic right ventricle – meaning only three of the four ventricles of Odin’s heart fully function. The right ventricle that pumps blood to the lungs to be oxygenated and distributed throughout his body did not fully form. Without immediate intervention, this disease is fatal.
Odin spent 16 days in the Cardiac ICU. In that time his heart was extensively researched and his treatment plan was developed by a team of surgeons, cardiologists, practitioners, nutritionists, pharmacists, nurses and super heroes. Odin had his first open heart surgery at 7 days old. This surgery will allow him time to grow and strengthen until his next surgery in 4-6 months.
The first surgery was a success, but his parents were not allowed to hold him for 11 days as he was still in critical care.
Odin has done incredibly well physically and mentally during this journey. His parents stop and pause to truly appreciate the incredible healing that his tiny body has undergone. He had open heart surgery, recovered and went home in less than four weeks!
Odin’s parents must take every precaution to avoid exposing Odin to anyone that may be ill as a cold could send Odin into arrest. They are the primary caregivers of their son, and have the additional support of staff from Seattle Children’s Hospital as well as Ellensburg Pediatrics.
Odin’s brother, Zeke is amazing! He loves his baby brother. Zeke pats Odin’s head when he cries and is super gentle and sweet.
Sparrow Cash raised for Odin will help pay for ongoing medical expenses, travel costs to see doctors in Seattle, and every day living expenses.