Mya M.

Condition: Myelomeningocele
City, State: Sherwood, OR
Club: Tigard High School Sparrow Club Service Hours:
Date Adopted: 12/07/2018

Mya's Story:
Before Mya was born, a routine ultrasound showed she might have a form of Spina Bifida. Another test was done and the diagnosis was confirmed but they would not know how greatly she would be impacted until she was born. Her birth needed to be carefully planned as Mya would need an emergency surgery on her spinal cord if it was exposed. On February 17, 2009, Mya was born and given the official diagnosis of myelomeningocele, the most serious form of Spina Bifida. This means the bones in her back did not properly form during pregnancy leaving an opening and the spinal cord exposed.

When Mya was just one month old, she had her first surgery to repair the lesion. This would be the first of 19 surgeries in just nine years. Due to the neurologic injury, she does not have control of her bladder and bowel function. From 2010-212, doctors performed a Vesicostomy, Chait Cecostomy as well as a Gastrostomy, which allows her to receive the nutrition and medication she needs.

In 2013, Mya had her first grand-mal seizure and was diagnosed with Epilepsy. Tests show that she suffers from multiple seizures a day even after two medications to treat them.

In March of 2015, Mya had another spinal surgery and the medical team decided to place a pump under her skin to help with spasticity and pain.

Through time this little girl has weathered 19 surgeries, hundreds of hospital stays, scans, tests, therapies and procedures and a faces a future of the same. On November 19, Mya had another major spinal surgery to try and reduce her pain.

Mya wants the world to know that regardless of her pumps, leg braces, wheelchairs, etc, she is a typical ten-year old girl that wants friends, to be included, playdates and picked for teams.

Simply put, she wants to do and experience the simple things we all take for granted like wearing skinny jeans or using the bathroom. She would love to be as fast, strong and coordinated as everyone else but most of all she wants to be understood and accepted for who she is. Mya says, “Everyone is different and no one is perfect. It’s important to fill someone’s bucket everyday, just because.”

Despite everything Mya is one of the kindest souls you will ever meet. She loves science and reading in school. Mya also loves baby dolls, Littlest Pet Shops and makeup. Like so many others, she enjoys riding horses, swimming, dancing, singing and most of all Snapchat filters.

Mya’s warrior spirit and beautiful smile will melt your heart. She will be adopted as a Sparrow to Tigard High School. Students will work hard to teach others compassion raise money for Mya through sponsored community service and fundraising.

sponsor(s):

Anonymous Family Foundation
Anonymous Family Foundation



Black Rock Coffee Bar
Black Rock Coffee Bar