Condition: Malformation of corpus callosum; ventricular septal defect (VSD); Cerebral Palsy
City, State: Medford, OR
Club: Soutn Medford High School Sparrow Club Service Hours: 2417
Date Adopted: 11/09/2018
McKinley's Story:McKinley was born on March 31, 2014, arriving in this world with very complex medical needs.
Right away, it was discovered that McKinley had a severe medical issue involving her brain. Her corpus callosum did not develop as it should, causing some major neurological abnormalities.
At 3-months-old she was diagnosed with ventricular septal defect (VSD). VSD is a hole in the heart that separates the lower and upper parts. Doctors considered surgery, but after close examination, her family chose to forego the surgery due to it being very risky for her already weakened brain. Most likely, her brain could not handle the invasive surgery, and she would be in a state of “failure to thrive.”
McKinley was also diagnosed with cerebral palsy, and did not learn to walk until the age of two. Now, she loves to wander and adventure, but must be kept under a very watchful eye to keep her safe. She is very unaware of her surroundings and does not understand safety guidelines.
She has severe GERD, which leads to acid reflux. She wears orthopedic inserts to help her walk, and most recently she was diagnosed with being on the autism spectrum.
McKinley receives therapy daily. She also has speech and occupational therapy once a week. Her needs continue to grow, and every day is a new adventure medically. Currently, doctors are stumped with a possible syndrome she may be growing into, but the findings are inconclusive at this time.
McKinley is a beautiful “sunshine girl,” as her mother refers to her. She lights up her world with her big, bright, and beautiful smile. She enjoys music, bubbles, her family, and loves the freedom of swinging on her swing.
McKinley will be adopted as a Sparrow to South Medford High School. Students at SMHS will work hard to raise money for McKinley through sponsored community service and fundraising projects.