Condition: Cerebral Palsy, Hydrocephulous
City, State: Bend, OR
Club: Trinity Lutheran School Sparrow Club Service Hours:
Date Adopted: 10/08/2013
Mason's Story:Mason was born a healthy little boy on Aug. 10, 2011. He was growing and progressing well. One morning, at five weeks old, his mother, Tashina, was rocking him when he began to turn pale and lethargic in her arms. As she was preparing to take him to the hospital, he stopped breathing twice.
Mason was rushed into the ER. It was not long before they received a diagnosis. Mason had a condition known as coarctation of the aorta. His aortic duct had failed to close properly after he was born, and the artery was damaged. When the duct finally did begin to close, much later then it should have, his heart wanted to stop working.
Mason would need heart surgery as soon as possible. He was flown to Doernbecher Children’s Hospital in Portland. Due to the pressure changes and his extremely high blood pressure at the time, he had 2 interventricular brain hemorrhages as well. Doctors had to work to stop the brain bleeding first before they could perform any heart surgery. Mason was now in a coma.
There was so much blood in Mason’s brain that they couldn’t tell the extent of the brain damage. The MRI’s were inconclusive. Bleeding had damaged the valves in his brain that drain fluid so he had shunt put in to help. He had three blood transfusions during this time as well. Finally, after 2 weeks, they were able to perform the surgery to repair his damaged heart.
After three long weeks in the hospital, Mason slowly began to come out of his coma. Due to the lack of blood flow to his lower organs, he suffered a stomach infection. After 32 days, a feeding tube placement, 4 brain surgeries and open heart surgery, Mason was able to come home. Mason had paralyzed vocal cords, hearing loss in his right ear, was completely blind and had condition call 3rd nerve palsy.
Mason has come a long way since then. He still has his feeding tube, has developed hydrocephalus, cerebral palsy, and epilepsy - but he can now see and hear, and his vocal cords have recovered. He develops cysts on his brain that he will continue to have to have removed. At two, Mason has undergone 9 brain surgeries and will need to have more as he grows. He won’t drink anything and has to have all his fluids through his feeding tube. He just began eating solid foods this past February.
Mason is a bright little boy who loves to be read to, loves animals, being outside and especially giving hugs and kisses to everyone he meets. Sparrow Cash raised for Mason will pay for ongoing medical expenses, transportation costs and shoes to help Mason walk.
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