Luka H.

Condition: Congenital Diaphragmatic Hernia
City, State: Redmond, OR
Club: Ridgeview High School Sparrow Club Service Hours:
Date Adopted: 11/01/2013

Luka's Story:
Luka is just 3 months old but he has had to deal with much in his short little life. When his parents were expecting Luka, they had the usual ultrasound at 18 weeks just to see how things were going. At that time, the ultrasound found cysts on his brain. Another ultrasound was performed a few weeks later. At that time, the cysts were gone but they couldn’t find his heart. Melody was sent to a high-risk pregnancy doctor. It turns out that his heart was fine but his kidneys were enlarged and he was diagnosed with a rare right sided congenital diaphragmatic hernia. This is where a child develops with a hole in the diaphragm allowing the lower organs to be pushed up into the chest cavity.

Luka’s parents were sent to Legacy Emanuel Hospital in Portland. Doctors said that Luka would be delivered via c-section at 38 weeks. At 8:00AM on June 3, 2013, little Luka was born.

Luka was immediately whisked away. He was blue and still for over an hour as doctors worked to resuscitate him. The doctors were able to get him stabilized and on a ventilator. Because Luka had his hernia on the right side, he also had part of his liver and bowels up in his chest. They needed to be sure he was stable before performing the surgery to correct that.

Three weeks later Luka was able to undergo surgery. Surgeons found that his hernia was so big, they couldn’t tie it off the way they normally would. They had to put a mesh patch over it instead which increased Luka’s risk of the hernia recurring.

Upon returning home, Luka needed to be put on oxygen due to the elevation change. Luka returned to Portland two weeks later for his surgical follow up only to find that his patch had broken and his bowels were up in his chest again. Luka spent one more week in the hospital before coming back home.

He has been home a few short weeks now. He is still having breathing problems. Doctors have found that his right lung is beginning to collapse. He has been placed on oxygen again. This brings with it the risk of his diaphragm working too hard and causing his patch to once again break open. In the meantime, he doesn’t eat well and is in lots of pain. He continues to be monitored in Portland every two weeks.

Sparrow Cash raised for Luka will help to pay for ongoing medical expenses and travel expenses back and forth to Portland.


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