City, State: Redmond, OR
Club: Summit High School Sparrow Club Service Hours: 476
Date Adopted: 11/30/2012
Katie's Story:Katie was a normal, active teenage girl who spent her days homeschooling and participating in many extracurricular activities. Her favorite pastime was dancing. She had been dancing since she was 5 years old and practiced several days a week. Katie always had lots of energy and enjoyed her physical activities with passion and purpose. But, on March 31, 2011, all of that began to change.
Katie’s twin sister Megan, had been ill for the past ten years with a disorder known as POTS (Postural Orthostatic Tachycardia Syndrome). So when Katie came out from a dance practice complaining of not feeling well, her parents had concerns. Katie spent the next 21 days in bed with a severe migraine. She was taken to see her sister’s physician, and Katie was also diagnosed with POTS.
Since her diagnosis in April of 2011, Katie’s health has declined dramatically. She has had a headache every day since that time, some turning into severe migraines that medication cannot relieve. By November of 2011, Katie could not sit up or see long enough to do school work. Since the summer of 2012, she has been completely bedridden, unable to get up except to be taken to receive her IV fluids. She must be pushed in a wheelchair now and cannot walk on her own.
Katie must take 18 pills every 4 hours to help maintain her blood pressure and other body functions. Her kidneys no longer retain fluid and sodium so she receives IV fluids several times a week to prevent dehydration. She will be receiving a PICC line soon to help with this and, if she responds well, she will have a port placed in her chest so her parents can give her daily IV’s at home.
POTS is a rare disorder and not much can be done to help patients who suffer from it. Doctors say that 80% of children who are diagnosed with POTS will be better by their late teens or early twenties.
Sparrow Cash raised for Katie and her family will help to purchase a special recliner for her to sit and sleep while bedridden. It will also help to pay travel and medical expenses to see a specialist in Texas who hopes to help kids with POTS get back to a normal life.