Condition: Chromosome 15q Duplication
City, State: Redmond, OR
Club: Redmond High School Sparrow Club Service Hours:
Date Adopted: 2/20/2015
Running, jumping and climbing are a few of Jayden’s favorite things. It is difficult to see that she has a rare genetic syndrome that only affects about 3,000 people nationwide. Chromosome 15q Duplication, or DUP15q. This causes Jayden to battle Autism, Global Development Delay, Hypotonia, or low muscle tone, Exotropia, that affects eye sight, and GERD, which is Gastroesophageal reflux disease.
When Jayden, also known as, Little Mama was born, her parents Jesse and April saw a beautiful little girl that was healthy and happy. They noticed at around 3 months old, Jayden wasn’t able to hold her head up, couldn’t sit up and wasn’t getting stronger, as a normal baby would. She was initially diagnosed as having Autism, but upon further testing it was found that she had Chromosome 15q Duplication, which opened a whole host of new struggles that Jayden may face in the future.
As of right now, Jayden and her family must travel to Portland six times next month, with two surgeries scheduled during two of those six visits. Jayden attends occupational therapy for at least half the year and with her low muscle tone she also regularly attends physical therapy. This helps prevent joint damage that is caused by her low muscle tone.
Although Jayden’s life has been a difficult one, she is a spunky little girl who is full of life and energy. She loves fruit, which is her favorite food, and can be pretty silly, as she planks constantly throughout the house.
Jayden will be adopted as a Sparrow to Redmond High School. Students will work hard to raise money for Jayden through sponsored community service and fundraising projects.