Condition: Mutation of the NONO gene
City, State: Klamath Falls,OR
Club: Lost River Jr./Sr. High School Sparrow Club Service Hours:
Date Adopted: 11/10/2021
Forrest's Story:Forrest is a 2-year-old little boy who is incredibly sweet. He loves dancing, music, reading books, and playing with his big sister, Lilliana.
Forrest was born with a very rare condition that is a mutation of the NONO gene. This gene mutation causes several medical challenges that will affect Forrest throughout his entire life.
These challenges include a tall and skinny stature, several mid-line defects affecting his muscles and joints, a congenital heart defect, sensory challenges, and developmental delays.
Forrest is also missing the corpus callosum in his brain (the area responsible for sending signals to his body).
Forrest is enrolled in physical, occupational, and speech therapies. He receives all his nutrition and medications through a G-tube.
There are only about 35 males world-wide who have this disorder. Forrest had a brother named Hunter who passed away from the same condition.
Despite all the medical challenges, Forrest is such a sweet and loving little boy.
Forrest will be adopted as a Sparrow to Lost River Jr./Sr. High School. Lost River students will work hard to raise money for Forrest through sponsored community service.
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