Evan was diagnosed at 22 months with a rare form of brain and spinal cancer, Atypical Teratoid Rhabdoid Tumor. He received aggressive chemotherapy treatment for 48 weeks until the cancer was unresponsive. He then received 6 weeks of proton radiation in Chicago.

​Evan is now​ 4 years old, and in remission, but ​continues to have scans every three months. He also has physical therapy, occupational therapy and speech therapy. He wears braces on his legs ​- which need to be replaced every time he outgrows them.

Evan is in preschool and enjoys taking the bus with his 3 older brothers. Evan also enjoys puzzles, coloring, and of course, his Mickey Mouse Ipad. In the summer he loves to swim and play outside.