Condition: Global Cystic Encephalomalacia
City, State: Klamath Falls, OR
Club: Mazama High School Sparrow Club Service Hours: 1204
Date Adopted: 12/28/2012
Dominik's Story:Sweet, affectionate Dominik, or “Dom” as family and friends like to call him, came into this world five weeks early and spent the first six weeks of his life in the Neonatal Intensive Care Unit. At four weeks old, an MRI revealed that only one-third of little Dom’s brain had developed correctly.
Dom was diagnosed with Global Cystic Encephalomalacia, which means that the majority of his brain is fluid. Fortunately, Dom’s brain stem, cerebellum, and post mid brain did develop, which means that he is able to express himself and share his great personality with others. However, it was still communicated to Peter and Treena (Dom’s parents) that Dom would most likely never crawl, walk, talk, see, or hear.
Not people to give up so easily, Peter and Treena started researching an alternative therapy called the Anat Baniel Method, which works to re-educate the brain through the use of the nervous system. Since Dom has been placed in this program, he has made amazing and unbelievable progress. He is rolling onto his tummy, grasping at toys, and is even beginning to push up and lift his head. He is hearing well with his hearing aid and his eyesight seems to be improving!
There are still many challenges (damaged lungs, fragile immune system, developing scoliosis, etc.) but the gains and progress that Dom is making are enough to keep his family and friends encouraged and inspired.
The Roby family still continues to travel every 3-4 weeks for Dom’s medical needs, and the ongoing therapy expenses are high (as much as $30,000 per year).
Dom will be adopted as a Sparrow to Mazama High School. Students will make Dom the focus of their lives as they work hard to raise money for him through community service and fundraising projects, sponsored by Southern Oregon Elmer’s in their ongoing partnership with Sparrow Clubs. Funds raised for Dom will help with continued therapy expenses, in addition to travel and general living expenses, as Dom’s family continues to work hard to get him the support that he needs.
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