Condition: Communicating Hydrocephalus
City, State: Redmond, OR
Club: Lynch Elementary Sparrow Club Service Hours:
Date Adopted: 12/10/2013
Conner’s parents took him in for his two-year well baby check already noticing that his head seemed a bit larger than other kids his age. Conner’s head measured 120% of normal.
Connor’s equilibrium appeared off, and he fell frequently. In October 2011, he had his first major fall requiring stitches. One week later, he walked up the steps in the house and fell down them. The next morning, when his mom went to change him, she tried to stand him up and he just kept falling over.
By the time of his next check-up, he had no equilibrium at all, fell all the time, and his speech was starting to slur. Connor’s head was measured again and it was almost as large as an adult’s head. His feet had remained the same size for a year, signaling other problems. An MRI showed some brain abnormalities. The family was sent to Doernbecher’s in Portland.
Connor was diagnosed with Obstructive Hydrocephalus. The ventricles in his brain were overly full of fluid due to a blockage in the ventricles that guide fluid through the brain. The fluid had made his head larger and actually shrunk his brain.
After additional tests, doctors performed a procedure called an ETV. They put a hole in his head and went down through the brain and placed a hole to allow fluid to move again. Conner was released from the hospital in December of 2011.
Things were going well for Connor until January of 2013 when he started having issues again. He was having trouble with his speech and became very lethargic. Doctors worked to correct problems with the original ETV as it wasn’t working properly.
Connor began to suffer severe headaches and vomiting. Doctors placed a shunt in the outer portion of his brain to help with regulating the amount of spinal fluid. Two days later, his condition began to worsen. Doctors found that his protein levels were dangerously high and he would have to remain in the hospital under close supervision until they could get the situation under control. Further tests showed that Connor had also acquired Communicating Hydrocephalus. This means that his body is now producing spinal fluid faster than his body can absorb it.
Connor is home for now and “stable.” He will need to have another shunt on the left side of his brain but they are holding off as long as they can. He continues to receive both occupational and physical therapy and has been able to begin special education preschool as well.
Sparrow Cash raised for Connor will help pay for ongoing medical, travel and therapy expenses.