Condition: Tetralogy of Fallot with Pulmonary Atresia and Major Aortopulmonary Collateral Arteries
City, State: Beaverton, OR
Club: Aloha High School Sparrow Club Service Hours:
Date Adopted: 2/08/2018
Beckham's Story:While many parents are learning the gender of their baby and getting a first look at them in an ultrasound, Beckham’s parents received the devastating news that he would need heart surgery during the first few months of his life.
A cardiologist diagnosed Beckham with a very rare congenital heart defect called Tetralogy of Fallot with Pulmonary Atresia and Major Aorto-Pulmonary Collateral Arteries. Since the diagnosis was so rare, only a few surgeons had any experience in repairing this type of defect. In order to give him the best surgical care and quality of life, his family had to temporarily relocate to Stanford Children’s Hospital in California numerous times.
In April, Beckham was born at Stanford and endured many days of testing and a “cardiac catheterization”. After all the tests came back, doctors realized he needed 4-6 months to grow, and would need to be on continuous oxygen until he was strong enough for the surgery to repair his heart.
At five months old, Beckham returned to Stanford for his first open heart surgery. After the 16 hour surgery, his parents learned that the surgery did not go as planned. He was placed on ECMO (a type of life support) due to severe pulmonary hemorrhaging and received dialysis due to an acute kidney injury. Doctors had to leave his chest open from immense swelling. Nineteen days later, doctors placed a permanent pacemaker into Beckham’s chest. He then spent six weeks in the Cardiovascular Intensive Care Unit and continued his stay in a step down unit until he was stable enough to return home to Oregon in December.
Beckham desperately needs our help! As he continues to grow he will need more surgical interventions and procedures throughout his life to keep him alive. He will continue to be monitored closely by cardiologists to track when more surgeries are needed.
Despite everything Beckham has endured in his young life, he continues to prove that he is a Warrior who can and will overcome anything with a smile. His laugh is infectious and lights up the room wherever he goes. He loves reading books, listening to songs, sweet potatoes and playing in his Jolly Jumper.
Beckham is truly a “Little Heart Warrior”. He will be adopted as a Sparrow to Aloha High School, alma mater of his mother and grandmother. AHS Students will work hard to raise money for Beckham through sponsored community service and fundraising.