Annie M.

Condition: Hypotonic Ataxic Cerebral Palsy
City, State: Culver, OR
Club: Redmond High School Sparrow Club Service Hours: 503
Date Adopted: 12/15/2017

Annie's Story:

Annie’s mom didn’t have a normal pregnancy. Annie grew at a slower rate than a typical baby, always measuring smaller than what she should have. Towards the end of the pregnancy, doctors discovered it was due to Annie having restricted blood flow and they didn't have an explanation for it. There were some severe complications at 33 weeks into the pregnancy. It became life threatening after the doctors couldn't get her mom’s blood pressure down, so they had to do an emergency C-section. Annie was born about 6 weeks premature at the tiny weight of 2 lbs.13 oz.

Annie was in the NICU at St. Charles for just over 2 months. She never learned to nurse or drink from a bottle, so she wasn’t getting the nutrition she needed. After she went home, she was in and out of the hospital a few times, because she would get sick.

When she was about 3 months old, she had to have a feeding tube surgically placed in her stomach, so she could be fed with a feeding pump. She had to be fed with the feeding tube for a year and 9 months before she was eating all on her own and they could remove it. During this time, she had been having physical and occupational therapy to help her catch up, because she was behind on all her growth milestones. She didn’t walk until she was 1½ years old. The doctors thought it was simply developmental delay due to her premature birth.

Eventually, they knew there was more to her medical issues. At 3 ½ years old, she was diagnosed with Hypotonic Ataxic Cerebral Palsy at OHSU in Portland. Her low muscle tone causes her to struggle with balance and coordination. Annie uses leg braces to help stabilize her ankles and feet which help her balance quite a bit, but she still cannot independently do many things on her own.

She continues physical and occupational therapy regularly. In spite of all her challenges, Annie is so smart, sweet and funny… and a total girly-girl. She loves tutus and dresses. You would never guess by looking at her that she has a disability.

Sparrow Cash raised for Annie will help with ongoing medical expenses, swim therapy, and everyday living expenses. Students at Redmond High School will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.


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