Condition: Rett Syndrome
City, State: Medford, OR
Club: Jacksonville Elementary School Sparrow Club Service Hours:
Date Adopted: 9/07/2018
Anna is an 8-year-old little girl who attends Jacksonville Elementary School as a third-grader.
Anna lives with a condition called Rett syndrome. Rett syndrome is a rare non-inherited genetic neurological disorder. A child typically will not show signs of this syndrome until around the toddler stage.
Anna’s symptoms started to manifest when she was around two-years-old. This condition affects nearly every aspect of her life: her ability to speak, walk, eat, and even breathe easily.
A very frustrating aspect with RS is that children who suffer with this condition are able to understand far more than they can communicate to others.
Anna has also suffered with some seizure activity in her early years of life. Doctors placed her on medication, and this seems to be keeping the seizures at bay thus far. However, she is closely monitored by a neurologist for any seizure activity.
When Anna was 6-years-old, she began having difficulties with eating, so she was required to undergo a G-tube installation surgery. This feeding device ensures that Anna is receiving the fluids and calories she needs to grow.
Anna is a very intelligent and friendly little girl. She is engaging and has bright beautiful eyes that are ready and willing to communicate with others.
Rett syndrome is a condition that has no cure, so Anna’s family focuses on managing her symptoms and giving her the best life they can. Anna loves to be involved with others and thrives in community.
Anna will be adopted as a Sparrow to Jacksonville Elementary School. Students at Jacksonville will work hard to raise money for Anna through sponsored community service and fundraising projects.