Condition: VATER Syndrome, Klippel-Feil Syndrome, Sprengel's
City, State: Medford, OR
Club: Orchard Hill Elementary School Sparrow Club Service Hours:
Date Adopted: 12/05/2012
Angelica's Story:Angelica Sanchez, an intelligent, sweet, and beautiful 9-year-old girl, has lived with serious medical issues all of her life. At just three days old, Angelica endured her first surgery after being born with a condition called “tracheoesophageal fistula,” in which her esophagus was not attached to her stomach. This required Angelica to eat through a feeding tube for the next three years.
Angelica was also born with three other conditions that result in unique abnormalities. The first of these is V.A.T.E.R. syndrome, which has resulted in Angelica having only one kidney. The other two conditions involve Angelica’s skeletal system.
Klippel-Feil syndrome is a rare disease that is characterized by the fusion of two or more cervical vertebrae. Angelica has the use of only half the vertebrae that is typically needed, which results in the appearance of a shorter than average neck, along with decreased neck stabilization. Several other skeletal and organ abnormalities are often present with this syndrome.
Sprengel’s deformity is a rare congenital skeletal abnormality where one shoulder blade sits higher on the back than the other. In 2010, Angelica underwent shoulder surgery to help fix this, but unfortunately, it was not very successful.
While these conditions do cause pain and limit mobility, Angelica has learned to adapt, and can even swing across monkey bars!
Since birth, Angelica has endured eight surgeries and doctors have recently recommended a spinal neck operation, which would require Angelica to be homebound for 4-6 months while she recovers.
Angelica will be adopted as a Sparrow to Orchard Hill Elementary, the school she currently attends. Students will make Angelica the focus of their lives as they work hard to raise money for her through sponsored community service and fundraising projects, co-sponsored by Southern Oregon Elmer’s and Ms. Frances Chaney.
Funds raised for Angelica will help with uncovered medical and travel expenses and will also help with general living expenses as Angelica and her family continue to navigate through this time in their lives.