Condition: Rare Chromosome Abnormality
City, State: Redmond, OR
Club: Redmond Proficiency Academy Tom McCall Elementary School Sparrow Club Service Hours: 316
Date Adopted: 3/31/2017
Alexandria is a spunky, beautiful little 8-year-old girl with a big heart. She looks completely healthy, so you would never know the physical struggles she faces daily and all that she’s been through at such a young age.
She was born with a rare chromosome abnormality (that is being published and named after her) that affects her learning, nervous system, eyes, muscle control, heart, skin, stomach and kidneys (just to name a few).
Overcoming so much, struggling to keep up, dealing with peers that don’t understand her Tourette's and seizures, spending so much of her free time seeing doctors and her ten specialists… none of this has dulled her smile. This young girl is determined to conquer the world and nothing will hold her back.
Alexandria is outgoing and likes to share and educate people about her challenges with Tourette’s Syndrome. Tourette's syndrome is a problem with the nervous system that causes people to make sudden movements or sounds, called tics, that they can't control.
In July, 2016 Alexandria was named Miss Oregon’s Princess 2016. Because of that opportunity she has spread support and awareness as an ambassador for the three Children’s Miracle Network Hospitals here in Oregon, one of which is Doernbecher Children’s Hospital in Portland, where she is a patient.
Although Alexandria has endured so much at such a young age… she is a happy, caring, and inspirational little girl who loves to volunteer in the community any chance she gets.
Sparrow Cash raised for Alexandria will help with ongoing medical expenses, travel to her doctors in Portland, and everyday living expenses. Students at Redmond Proficiency Academy will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.
Hands & Feet Charitable Fund of OCF, in Honor of Summit High's Thunder Boys Hands & Feet Charitable Fund of OCF, in Honor of Summit High's Thunder Boys