Condition: Arteriovenous Malformations
City, State: Central Point, OR
Club: Crater Academy of Health & Public Service Sparrow Club Service Hours:
Date Adopted: 9/27/2016
If the term “Arteriovenous Malformations” is unfamiliar to you, you are not alone. After all, this rare and unique medical condition is experienced by less than 1% of the American population.
Arteriovenous malformations (or AVMs) are abnormal connections between veins and arteries. AVMs result in a tangle of blood vessels void of necessary capillaries. Without capillaries, there are abnormally direct connections between high-pressure arteries and low-pressure veins. Although AVMs can appear in any location throughout the body, they are often associated with the brain and spinal cord.
Addison (Addi for short), a sweet, lively, redheaded 9-year-old girl, has such severe brain AVM’s that every day carries with it the risk of dangerous brain bleeds, which could possibly result in seizures, stroke, or worse.
In August 2012, five-year-old Addi underwent a very long and extensive surgery to remove two of three AVMs that were located in her brain at that time. The surgery was successful. However, the third AVM was too deep within her brain to operate on.
The next four years Addi went in for regular cautionary tests. Then, on July 3, 2016, while rafting down the beautiful Rogue River, a debilitating fear struck this family once again. Little Addi let out a horrifying scream, started vomiting, and was unable to speak or respond. After being rushed to the hospital, doctors came back to announce that little Addi’s body is now producing more AVM’s.
Addi and her family face a scary diagnosis, but this incredible little girl is a true fighter. She has already, at the tender age of nine, won over so many hearts. This family is a dynamic part of our community and truly appreciates the opportunity to allow us to embrace their amazing “hero” little girl.
Addi will be adopted as a Sparrow to the Crater Academy of Health & Public Service (CAHPS). Students will work hard to raise money for Addi through community service and fundraising projects. Funds raised for Addi will help cover frequent travel expenses, general living expenses, upcoming surgeries, and other medical procedures needed to help this beautiful child thrive.