Condition: Athetoid Cerebral Palsy, Dystonia and sensory processing disorder
City, State: Beaverton, OR
Club: South Meadows Middle School Sparrow Club Service Hours: 390
Date Adopted: 1.11.2018
Kian's Story:When Kian was born, he was not alive and a dedicated doctor worked frantically for 15 minutes trying to resuscitate him. It was a miracle, but Kian’s only movements after this were seizures. The medical team decided to try a new treatment by placing him on cooling blanket which attempts to cool the body down and prevent further injury to the brain. Kian’s mom wasn’t able to hold him until he was five days old.
Doctors informed his parents that he was a very sick little boy. He had no gag reflex and no desire or ability to swallow and they placed a nasal tube. Kian was placed on heavy sedation and medication to control his seizures. For the first several weeks, he was pretty unresponsive. However his parents never gave up and read to him constantly, played classical music to him and gave him rounds of physical therapy. Eventually, Kian started to engage with them.
An MRI showed that Kian had suffered moderate damage to his basil ganglia as well as mild damage to his brain stem and occipital lobe. Doctors believed the cooling blanket had saved his life. Kian’s parents were told he would suffer from seizures and never walk, move or see. At six weeks he began to aspirate and a G-tube was placed to avoid any further fluid in his lungs. He was finally able to go home. Kian began therapy three to five days a week to help him learn to function.
Kian was eventually diagnosed with Athetoid Cerebral Palsy, Dystonia and sensory processing disorder. From day one of his life, Kian has had to work really hard to do things that most people do with ease.
He has defied the odds and continues to amaze those around him. Kian loves music, singing and is smart as a whip. He enjoys playing on both a soccer and a baseball team.
All of these conditions require trying several therapies that help him improve his skills and learn how to navigate the world with his abilities. Unfortunately many types of therapy are considered alternative and not covered by insurance.
Despite an incredibly rocky start to life, at almost eight years old, Kian’s infectious smile and spirit will light anyone’s life. He loves a good joke and his favorite thing in life is friendship. What he wants more than anything is to have older friends who will love and accept him. Kian simply wants to be treated like everyone else.
Kian will be adopted as a Sparrow to South Meadows Middle School. Students will work hard to raise money for Kian through sponsored community service and fundraising.
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