Condition: Cerebral Palsy; Epilepticus
City, State: West Linn, OR
Club: Evergreen Middle School Sparrow Club Service Hours:
Date Adopted: 3/02/2018
Hannah's Story:Hannah and her twin sister were born a little early at one of the children’s hospitals in Portland. Soon after it was discovered Hannah had Cerebral Palsy and would experience challenges. Her family’s reaction was simply...Love her!
Before her first birthday, Hannah was learning to roll over, feed herself and babble but around this time she began having dangerous seizures called infantile spasms (IS), also known as West Syndrome. Doctors treated her with a powerful but potent medication regimen that lasted several weeks. As a result the IS was resolved. However, months later doctors discovered she had another type of epilepsy called Epilepticus during slow-wave sleep (ESES).
Today, Hannah still faces challenges with several seizures each night. Special therapies are helping her to learn to sit up on her own, to talk more and feed herself. Thankfully, Hannah is G-tube fed, so she is able to get all the nourishment her body needs. Hannah attends kindergarten with the help of an aid but must use a wheelchair to get around. She must work harder to do things most of us do with ease.
Currently, Hannah is being cared for by an incredible team of doctors, practitioners and therapists from all over the country. She must work with neurologists, local care providers and neurosurgeons to help her learn and grow.
While the challenges Hannah is experiencing today will be lifelong, she continues to warm the world with her loving smile, contagious laugh and incredibly funny sense of humor. She enjoys laughing with her family, dancing “The Hannah Dance,” to her favorite pop artists, splashing in the water and swinging in the park. When Hannah is not rocking out to music you can find her enjoying her favorite episodes of Wheel of Fortune, Jeopardy and Cat in the Hat
Hannah will be adopted as a Sparrow to Glencoe High School. Students will work hard to raise money for Hannah through sponsored community service and fundraising.