Garret F.

Condition: Zinsser-Engman-Cole Syndrome
City, State: Ellensburg, WA
Club: Lincoln Elementary School Sparrow Club Service Hours: 418
Date Adopted: 9/30/2016

Garret's Story:

Garret is 10 years old.  During a routine doctor visit, it was discovered that Garret had a rare progressive bone marrow failure syndrome. It only occurs in 1 out of 1 million people. He had had no symptoms.

 Garret's bone marrow did not produce enough of one or more kinds of blood cells his body needed. He had many blood and plasma transfusions, prior to having a bone marrow transplant on August 12, 2016.  Garret's father was the donor of his new bone marrow.

Garret must remain in the hospital for 100 days following the transplant. His father has had to take time off work to stay with Garret at the children's hospital in Seattle.  Garret will be required to stay out of school for one year after his transplant as his immune system is weakened.  While at the hospital, teacher aides will help him not to fall behind in his school work.

Garret enjoys running machinery and riding his motorcycle. He is active and kindhearted, staying positive throughout this experience.


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