Condition: Severe Epilepsy
City, State: Bend, OR
Club: Bear Creek Elementary School Sparrow Club Service Hours:
Date Adopted: 2/06/2015
Clay is an active, playful 7 year old boy. Between soccer, scootering, cross country skiing and biking, he is a busy elementary schooler! Many may not know though, that Clay is a miracle child. When Clay’s parents, Carisa and Dave, were expecting a healthy, normal boy they were scared to learn that their ultrasound showed low movement as a result from the umbilical cord draped around Clay’s neck and that Meconium Aspiration had occurred, which is when the baby passes feces in the womb. This prompted an emergency C-section.
When Clay was born he had damage to his brain due to a low oxygen environment and was diagnosed as having a mild form of Cerebral Palsy. Then, something terrible happened, Clay’s liver and kidney started shutting down. Clay and his Dad, Dave, were airlifted to Portland, where Clay was intubated for two weeks. Clay, also, has an irregular brain wave pattern, which causes significant and prolonged seizures. Because of this, Clay couldn’t handle the stimulation of touch, that meant that Clay’s parents couldn’t hold their beautiful baby boy for over two weeks after they were in Portland.
Clay went on anti-seizure medication for six months and was then taken off the medication. He was off medication until his third birthday. Clay suffered a 30 minute long seizure, usual seizures last less than 20 minutes, he spent the rest of his birthday in the hospital. The rest of the year, Clay was in the hospital at least once a month with these prolonged seizures.
It was then found that Clay has a severe form of epilepsy that causes long and difficult seizures. Typically, his parents have to take him to the Emergency room to get the seizing to stop. Now, Clay has many different forms of medication he takes every month that are very expensive. One specific, strong medication is over $600 each time it is prescribed. Recently, Clay’s blood pressure has spiked, prompting him to be on blood pressure medication as well.
With a combination of the seizures and a heavy dose of medication throughout his life, Clay is developmentally behind, but that has not stopped him from being happy. Clay loves people and everyone is his friend. He loves anything to do with the movie “Cars” and has a newfound love of Disneyland after a recent family vacation.
Sparrow Cash raised for Clay will help with ongoing medical expenses because of Clay’s Epilepsy. Students at Bear Creek Elementary will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.