Condition: O.S.C.S. (Osteopathia Striata with Cranial Sclerosis)
City, State: Auburn, WA
Club: Overlake Christian School Sparrow Club Service Hours:
Date Adopted: 1/14/2014
Cassidy was born with a syndrome called O.S.C.S. (Osteopathia Striata with Cranial Sclerosis ). She was given a tracheotomy when she was born to help her breathe, and a feeding tube to help her eat, because she could not do those things on her own.
Today, Cassidy is nine years old. She still has the trach and the feeding tube. She cannot talk without the help of a machine. She cannot sit up, stand, or walk without help. It takes a team of people to help her through all of this.
Cassidy has 15 doctors to help keep her strong. Cassidy goes to therapy weekly. She has nurses with her at home - 16 hours per day. When Cassidy attends school, she has a nurse to help her there as well.
Cassidy's prognosis is that she will become blind and deaf - and may lose the ability to smile because of the loss of those things. So far, she continues to lose a little of her hearing each year. However, Cassidy is staying out of the hospital more and more every year and is getting stronger by the minute.
Cassidy faces many challenges every day. She uses a Tracheostamy tub with bi pap at night, has a recurrent bacterial infection of the windpipe (trachea), progressive bilateral hearing loss, a bleeding disorder, a seizure disorder, and a partial dislocation of her hip.
However, Cassidy loves life! She loves the ABC song, and smiles, laughs and kicks every time she hears it. She reaches out to people she sees and smiles to draw them in. She loves to play the guitar and the piano. She likes bowling. Cassidy also likes to watch Barney and the Little Engine that Could.
Cassidy always keeps trying - she won’t give up. Her life has not been easy, but she is an inspiration to everyone with whom she comes in contact. She can brighten someone’s day with one smile, even though she is the one that is sick. Cassidy touches lives every day and her family loves her very much.
Club is School Sponsored Club is School Sponsored