Condition: Tetralogy of Fallot
City, State: Medford, OR
Club: Crater High School Sparrow Club Service Hours:
Date Adopted: 12/07/2017
Bauer was born on June 8, 2012. Just that very evening doctors discovered that something was wrong. Bauer’s skin had a bluish tint and tests revealed low blood sugar. Upon further testing, it was discovered that Bauer had a very rare congenital heart defect called “Tetralogy of Fallot.”
In 2012, when Bauer was just 3-months-old, he underwent open-heart surgery. Bauer had a hole in his heart (between the right and left ventricles) and his pulmonary artery was significantly narrow. The condition of his heart was causing low oxygen in the blood, which was life-threatening.
Chromosomal abnormalities are common among children who suffer with Tetralogy of Fallot. Bauer has a very rare abnormality associated with this condition, called 6P terminal microdeletion. It is so rare that only 30 people worldwide are reported to have it.
The statement “terminal” in this condition refers to the end of a chromosome. It does not mean that it is life-threatening. At the end of this chromosome, deletion is taking place. Deletion, in Bauer’s case, has caused the loss of hearing, vision problems, and it has affected his motor development.
At his 5-year check-up, doctors had a red-flag come up with his growth-chart. With all the associations that go along with his condition, further precautionary testing will be done to check for any hormone abnormalities.
Currently, Bauer participates in an equestrian type therapy, physical therapy, and speech therapy.
Bauer has learned around 130 words in American Sign Language and attends preschool at Sonshine Early Learning Center.
His family has hopes to get him into feeding and occupational therapy very soon. In the meantime, Bauer has annual check-ups for his heart, and will most likely receive a valve-replacement surgery when he is a teenager.
Bauer is a sweet-lovable little boy who loves airplanes, trucks, riding his bike, and watching his sister perform at her dance recitals.
Bauer will be adopted as a Sparrow to Crater High School. Students at CHS will work hard to raise money for Bauer through sponsored community service and fundraising projects.