Condition: Cystic Fibrosis
City, State: Bend, OR
Club: Pacific Crest Middle School Sparrow Club Service Hours:
Date Adopted: 12/05/2016
Lucy is a beautiful little girl with a smile that will light up a room. When Lucy was born, she was very sick and needed care in the NICU. That is where she was diagnosed with Cystic Fibrosis, which is a progressive life-threatening disease of the lung and digestive system. After a month in the NICU Lucy spent her second month at Doernbecher Children’s Hospital. Lucy struggled to gain weight and had a serious lung infection.
Lucy has advanced lung disease and is feeding tube dependent. She takes special enzymes to help her absorb her formula. Her feeding pump runs 18 hours a day. When Lucy is not sick she spends 1 hour and 20 minutes, two times a day, doing breathing treatments and airway clearance therapy. When she’s sick she does this treatment four times a day. At times, Lucy needs to go to Doernbecher’s for IV antibiotics. She also makes trips to Portland for doctor visits every two months and is usually very worn out by the time she gets back home.
Lucy needs special care throughout the day and night. Until there is a cure for Cystic Fibrosis, Lucy will never have the typical life that we all take for granted. This does not stop her from being a very busy toddler. She learned to walk wearing a back pack that holds her feeding pump. Even her siblings have trouble keeping up with her.
She’s a typical toddler who wants to play outdoors, but she can’t play in the dirt, puddles or in some pools or lakes due to bacteria that could harm her lungs. At not quite two years old, this is hard for her to understand. She doesn’t know that normal child’s play could be extremely dangerous for her.
Although Lucy has endured through many challenges she is a happy, fun-loving little girl who loves monkeys, owls, and watching Thomas the Train movies during her breathing treatments.
Lucy loves being outside. She likes to look and listen for birds, see the river, and she gets very excited when the wind blows. Lucy also loves music and dances and sings whenever she hears her favorite songs.
Sparrow Cash raised for Lucy will help with ongoing medical expenses, travel to Portland, building a Cystic Fibrosis friendly outdoor play area, and everyday living expenses. Students at Pacific Crest Middle School will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.