Condition: Obstructive Hydrocephalus
City, State: Redmond, OR
Club: St. Francis School, Bend Sparrow Club Service Hours: 290
Date Adopted: 2/23/2012
Conner’s parents, Sara and Austin, took him in for his two-year well baby check already noticing that his head seemed a bit larger than other kids his age. Connor’s head measured 120% of normal.
Connor’s equilibrium appeared off and he fell frequently. In October 2011 he had his first major fall requiring stitches. One week later, he walked up the steps in the house and fell down them. The next morning, when his mom went to change him, she tried to stand him up and he just kept falling over. She took him to the emergency room and after checking Connor over, the doctors sent them home.
By this time of his six month check up in December, he had no equilibrium at all, fell all the time, and his speach was starting to slur. Connor’s head was measured again, and it was almost as large as an adult’s head. His feet had remained the same size for a year, signaling other problems. An MRI showed some brain abnormalities. The family was sent to Doernbecher Children’s Hospital in Portland.
Connor was diagnosed with Obstructive Hydrocephalus. The ventricles in his brain were overly full of fluid due to a blockage in the ventricles that guide the fluid through the brain. There are 4 ventricles and one of his was completely blocked. The fluid had made his head larger and actually shrunk his brain.
Doctors did additional tests then performed a procedure called an ETV. They put a hole in his head and went down through the brain to the third ventricle and placed a hole to allow fluid to move again. Conner was released from the hospital December 19, 2011. By December 28th, at his two-week check up, his head size had reduced; he began speaking correctly and started to walk again.
Connor returned to Doernbecher’s in January. There was still a lot of fluid on his brain.
Conner’s parents are watching him to see how he progresses. It is possible that Connor will have to have a shunt put in to help drain the fluid from his brain. There is no cure for this condition so Conner will experience surgeries for the rest of his life. Because the fluid hasn’t traveled properly, it has affected his lower extremities. He will need help with correction for his feet, as well as speech therapy. There may be other issues that arise as he gets older.
Sparrow Cash raised for Conner will help pay for ongoing medical expenses, travel expenses, therapy, and equipment needed to correct his feet.
Connor is being adopted by the students at St. Francis School who will perform community service hours to “earn” the Sparrow Cash provided by the Club Sponsor, J. Morris.