Gabriella (also known as Gabbie) is just about to turn 3 years old. She loves her mom, dad, and older siblings, Tiffany, Glen, Hannah, Angela, Joseph, and Naomi. She is known for her sweet smile, big personality, and until her cranial surgery, her large-fancy hair bows.
Gabbie was born with a rare genetic syndrome called Weiss-Kruszka syndrome. It took 18 months of searching for answers to ger her diagnosis.
This genetic syndrome has caused many health problems for her that include GI issues, low muscle tone, feeding challenges, craniosynostosis, ptosis (droopy eye lid), bi-lateral hip dysplasia, level 2 autism, and GERD. She also battles cognitive, physical, and speech delays.
Before Gabbie was 16 months old, she had already endured six surgeries, and even more tests, procedures, and hospital stays.
There are few known cases of this syndrome, causing there to be limited information and basically creating a “learn as she grows” type of situation for both doctors and her family.
Despite all the hurdles this little girl has is faced with, Gabbie wakes up each day with determination. She finds joy in the simple things and hopes her story will inspire others to never give up. She and her family hope others are reminded that life is precious and to live each day to the fullest.
Gabbie will be adopted as the Sparrow to North Medford High School. North students will work hard to earn money for Gabbie through sponsored community service.
