Condition: Connective Tissue Disorder; Chiari Malformation; Cranial Cervical Instability; Cardiac Condition
City, State: Bend, OR
Club: Bend High School Sparrow Club Service Hours:
Date Adopted: 12/22/2017
Stryder has a long and complicated list of medical issues he has dealt with his whole life. It consists of multiple abnormal genetic abnormalities. He has a diagnosed connective tissue disorder, history of Chiari Malformation and Cranial Cervical Instability requiring surgical intervention, and a complicated cardiac condition. Stryder also has Landau-Kleffner Syndrome/intractable epilepsy and has constant seizures. He has dealt with developmental delays and currently deals with attention concentration and conceptual learning.
Stryder’s family became interested in getting a service dog for him when they learned many of his seizures happened at night, and many of them were going undetected. Having his dog Keebler means the family will be able to tell when the frequency of Stryder’s seizures increases… and Keebler is a great comfort to Stryder.
Stryder has an unknown connective tissue disorder that wreaks havoc all over his body. He was first diagnosed with Ehler-Danlos Syndrome, but then several doctors, including the top specialists in the world on the condition took away the diagnosis because of several factors, including his aortic root was dilated way beyond any other recording for a child as young as he was. Stryder is profoundly hypermobile in all his joints throughout his body. Doctors have said he has a chance for aneurysms anywhere in his body at any given time and scans are no good because it could be normal today and tomorrow it may show bulging.
Stryder’s condition makes it so his body produces faulty collagen, the glue that holds your body together, which also includes his brain. Stryder was recently diagnosed with Chiari 1 Malformation and while that alone can be serious, he also has a kink in his brain stem. This condition is very dangerous and in his case, is caused by his faulty collagen.
Stryder has Cranial Cervical Instability and several bulging discs which he recently had stabilized thru surgery. He wears a neck brace to prevent further damage and cause blackouts from the vertebra hitting his spinal cord. He also has MANY other problems that are caused from his bad connective tissue.
In spite of so many challenges from the very beginning, Stryder is a typical 10-year-old boy. He likes video games, riding his scooter, and playing baseball when he’s able to. He really likes cuddling with his dog Keebler, which makes him happy.
Sparrow Cash raised for Stryder will help with ongoing medical expenses, and everyday living expenses. Students at Bend High School will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.