Condition: Gastroschisis
City, State: OR
Club: Lynch Elementary School Sparrow Club Service Hours:
Date Adopted: 2/24/2011

Rory's Story:
(8/16/11) It was February and Brian and Jordyn Glaser were finally able to enjoy their little boy Davis after his battle with a rare condition called gastroschisis and were eagerly anticipating the arrival of their newest child, due in July. Unfortunately, things did not go quite according to plan. At 13 weeks, Jordyn went in for an ultrasound only to be told that this child to would be born with the same condition as her older brother, gastroschisis. Gastroschisis is a rare non-genetic disorder that causes the intestines to be formed on the outside of the body. Because the disorder is not genetic, doctors told the Glasers that the chances of it happening again were very slim. But, the doctors were wrong. Jordyn began weekly trips to the High Risk pregnancy clinic at OHSU to be monitored during the course of her pregnancy. Because of the risk of death to infants with this condition, she was induced 1 month early and little Rory Elizabeth Glaser was welcomed into the world on July 20, 2011. Once born, little Rory was immediately rushed away. She received surgery that same night to put all her intestines back in. The surgery went well and Rory was sent to the NICU where she would spend the next few weeks of her life. Because her intestines were formed outside her body, none of her digestive system worked. She spent the first week of her life unable to eat and was fed only through a PICC line. Slowly she was introduced to food in very small amounts to give her body time to learn how to function. These amounts will be increased over time as her body learns to tolerate it. Rory was finally released from the NICU in August and is doing well. She must return to OHSU weekly for checkups and to be weighed. There are many complications that can happen as a result of this condition and she must be monitored regularly to catch any problems that may arise. Sparrow Funds raised for Rory will pay for ongoing medical expenses, transportation to Portland and living expenses for the family.


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