Payton H.

Condition: Injuries resulting from Pneumococcal Meningitis
City, State: Cle Elum, WA
Club: Kittitas Secondary School Sparrow Club Service Hours: 275
Date Adopted: 10/20/2016

Payton's Story:

We thank you for this opportunity and love our community and support they have shown to Payton.
Payton was born without a diaphragm and was put on life support right after birth. They performed a tracheostomy 3 weeks later and she would become ventilator dependent for the next 5 years with nursing around the clock. It was the hardest time of our lives, but she was a fighter.
Through years of her body growing and her intercostal muscles working to help her breathe, she would eventually wean for blocks at a time and worked her way off of the ventilator. She had two years of pretty great health, playing softball, basketball just like a normal child and then last November we were driving home from Montana, and she collapsed a half hour after we walked in the door. She was seizing and we could not figure out what was wrong with her. They performed 3 spinal taps enroute to Seattle Children’s we had learned that she Pneumococcal Meningitis. We couldn’t understand why she wasn’t answering us, but we had discovered a few weeks later she was completely deaf. She was in ICU for 2 and half weeks then transferred to floor where she would undergo months of rehabilitation to learn how to eat, walk, get dressed she was completely immobile as well as deaf. We had also learned by accident when they took her for an MRI (for cochlear implant placement) that she had developed hydrocephalus (swelling on the brain) and we need shunt surgery right away to relieve the pressure.Payton ended up profoundly deaf after the Pneumococcal Meningitis attacked her auditory nerve. She was then a candidate to receive a cochlear implant in one ear, but that did not end up working as her nerves too damaged on right side. So a couple weeks later we went for a second cochlear surgery on the left ear. This little lady (Miss Pay) is such a spitfire and loves life and we feel so overwhelmingly blessed that she is our little girl. Her strength is beyond what any of us can imagine, and I love the idea of kids helping kids and that she could inspire a community and a school. Life is about giving back that is what we try and teach all four of kids. She is the only girl and has two older brothers and baby brother that we are adopting. She is so motherly and such a sweet girl.


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