Nation J.

Condition: KIAA-2022
City, State: Medford, OR
Club: South Medford High School Sparrow Club Service Hours:
Date Adopted: 1/27/2021

Nation's Story:
Nation is a little boy who was born with a rare genetic disability called KIAA-2022. He also has a condition called cerebral palsy and is on the autism spectrum.

In the simplest of terms, KIAA-2022 combined with cerebral palsy and autism, means that Nation suffers with various types of seizures, aspiration issues, low muscle tone, and flexibility and sensory issues. He is also non-verbal.

Nation has been unable to eat on his own, so he has had g-tubes and feeding tubes at various times during his life. However, most recently, he has been receiving occupational and physical therapy which has helped improve his eating skills.

In the future, Nation will require the support of a walker, wheelchair, and specialized car seat. The low muscle tone in his legs prevent him from putting weight on his legs, therefore making it challenging to walk on his own.

Nation has had a very medically challenging start in life. However, due to people like his family and the “Little Rascals” day care facility he has overcome many obstacles.

Nation is a very happy little boy. He is always smiling and is full of joy, determination, and courage.

Nation will be adopted as a Sparrow to South Medford High School. SMHS Students will work hard to raise money for Nation through sponsored community service.


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