Condition: Necrotizing Enterocolitis; Pulmonary Hytertension; Retinopathy of Prematurity
City, State: Bend, OR
Club: Pacific Crest Middle School Sparrow Club Service Hours:
Date Adopted: 1/29/2018
Khloe's Story:Khloe’s mom had a very complicated pregnancy. She had twins, a little girl and a boy, and since their birth it hasn't been easy. They were born at 28 weeks and 6 days. They were micro-preemies and 10 days after they were born, Khloe got very sick.
Khloe got NEC, necrotizing enterocolitis, a devastating disease that effects the intestines of premature infants. The wall of the intestines was invaded by some bacteria that caused a local infection and inflammation that could’ve ultimately destroyed the wall of her intestines.
At just 1 ½ years old, Khloe has had three stomach surgeries. She now only has 30cm of her intestines and she should have 100cm. She gets most of her nutrition in a liquid called TPN. It goes through a central line into her body, directly to her blood stream. She also has a feeding tube and uses an Ostomy bag to get rid of her body’s waste.
She has recovered from the NEC disease but has many other problems. She has pulmonary hypertension, a type of high blood pressure that affects the arteries in her lungs and the right side of her heart. Her doctors and her family decided it would be best if she had a tracheotomy to help with her oxygen and she uses a vent to breathe better at night. Her body also has difficulty getting rid of waste, which makes her liver work harder. She had a heart murmur that was causing a lot of breathing problems, so she had a procedure to repair it. She also had Retinopathy of Prematurity, a disease of the eye affecting prematurely born babies. It has subsided, but she does have some eyesight problems… so now she wears glasses.
Khloe requires a lot of care, attention and love. She is an amazing little girl with such a spunky spirit.
In spite of all her challenges, Khloe is sweet, smiley and full of energy! She loves being held, having her mom read to her, and playing with her baby dolls. Her twin brother Gavin makes her very happy.
Sparrow Cash raised for Khloe will help with ongoing medical expenses and everyday living expenses. Students at Pacific Crest Middle School will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored