Condition: Aortic Stenosis
City, State: OR
Club: Grants Pass High School Sparrow Club Service Hours: 1072
Date Adopted: 10/30/2010

Kaleb's Story:
(11.15.10) Little Kaleb was born on August 1st, 2010. Not long after his birth, doctors found that Kaleb's heart was failing. He was diagnosed with "critical congenital heart disease and aortic stenosis," which means that Kaleb has a deformed heart valve, a stretched muscle around the heart, and scarring on the heart itself. In this state, the harder Kaleb's heart works, the more scarring it causes. Surgery to fix the valve failed and caused severe leaking around the valve itself. Doctors say that if Kaleb's heart muscle doesn't heal on it's own, he will need a replacement. Kaleb is scheduled for another surgery on November 17th at Stanford. This surgery is known as the Ross procedure, in which doctors will take Kaleb's diseased aortic valve and replace it with his own pulmonary valve. The pulmonary valve will then be replaced, using either a donor valve or an artificial one. Kaleb will need a new valve in 3-5 years as long as his growth milestones (crawling, walking, etc.) aren't too stressful on him. Because Kaleb's condition is so volatile, his family has to live in isolation most of the time to keep him from getting any kind of illness. Kaleb's big brother Allan (5 years old) can no longer attend school and must be homeschooled due to the high risk of bringing home illnesses from other children. Even after all Kaleb has been through, he is still a happy baby, who often smiles and has "helping hands," that try to grab everything in sight. Kaleb and his family are in need of much support and Sparrow Clubs is excited to "adopt" him to Grants Pass High School as their Sparrow for the 2010/2011 school year