Condition: Ganglioglioma Grade 1 Brain Tumor
City, State: Grants Pass, OR
Club: Grants Pass High School Sparrow Club Service Hours: 1191
Date Adopted: 10/19/2018
Jacob's Story:Jacob is 15-years-old and is a sophomore at Grants Pass High School.
When Jacob was 10-years-old, he underwent a seven-hour long surgery to remove a tumor located in his brain. Jacob was in the hospital at OHSU for a week to recover. During that recovery time, it was discovered that the tumor was not cancerous. However, it was a rare tumor called Ganglioglioma Grade 1.
Gangliogliomas are tumors that start from groups of nerve cells and grow in the brain. Due to location and the way the nerves intertwined around his tumor, it was impossible to surgically remove all of it. There was a 95% chance that Jacob would stroke if they were to try. Doctors made the decision to leave the remaining bit of tumor and keep a watchful eye on it. Everything looked successful for about four years.
Then, in 2017, Jacob had an MRI that showed the tumor was growing back at a rapid speed. Again, surgery was not an option because the tumor was dangerously wrapped around a major blood vessel.
Jacob’s family, and his team of doctors agreed to start Jacob on a chemotherapy plan. This particular chemo is a new trial drug that is proving to be very effective, without many side-effects. The hope is that this trial drug will shrink away the tumor enough to allow doctors to remove all of it, without harming that major blood vessel.
Jacob and his family travel to Portland every three months for MRI’s. He has follow-up appointments in Medford every month as well.
Despite everything, this young man has been through, Jacob has an incredible ability to overcome daily hurdles. He has maintained a 3.8 GPA, enjoys golfing, is very talented in archery, and still has his witty sense of humor about him. He is very loved by his teachers, friends, doctors, and family.
Jacob will be adopted as a Sparrow to Grants Pass High School. Students at GPHS will work hard to raise money for Jacob through sponsored community service and fundraising projects.