Gavin A.

Condition: Severe, uncontrolled Epilepsy
City, State: Redmond, OR
Club: Trinity Lutheran School Sparrow Club Service Hours:
Date Adopted: 11/02/2015

Gavin's Story:

Gavin is described by many as a heart with arms and legs. He has had a rough journey though in his 7 years of life. It started at birth with a 10-day induction period for his mom, Cindy. When Gavin was born, he had some respiratory issues, but other than that he was a healthy baby. When a double ear infection and fever caused a Febrile seizure his parents, Cindy and Cody were concerned that there could be more.

Gavin’s seizures were getting progressively worse and at 3 years old he was referred to a neurologist because of a recent astatic seizure that made him drop to the ground. At 3 years old, Gavin was diagnosed with Doose Syndrome, which is an epilepsy syndrome of early childhood that is often resistant to medication.

At 5 years old, Gavin was airlifted to Portland because the local hospital could not get him to stop seizing. Gavin had endured 48 seizures in a 24-hour period. To date, Gavin has failed 13 different anti-seizure medicines and 2 different diet therapies. This has lead doctors to believe that he may have a seizure disorder called, Lennox-Gastaut. This form of epilepsy is often treatment resistant.

Now, even though Gavin is 7 years old, his seizures have caused him to developmentally decline, which can be frustrating for Gavin. He also has a service dog in training named, Hudson that will be able to help alert others of Gavin’s seizures.

He will be headed to Portland in November to potentially start a third diet, called the Ketogenic diet, which a high-fat, adequate-protein, low-carbohydrate diet that in medicine is used primarily to treat difficult-to-control epilepsy in children

Although Gavin has had a tough journey so far, he is a fun and loving boy. He continues to make others laugh and he loves his trains and Kindle.

Gavin will be adopted as a Sparrow to Trinity Lutheran School in Bend. There, students will work hard to raise money for Gavin through sponsored community service and fundraising projects thanks to the project sponsor Wells Fargo.


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