Condition: Rett Syndrome
City, State: Medford, OR
Club: Jacksonville Elementary School Sparrow Club Service Hours: 454
Date Adopted: 10/19/2017
Sweet Elianna was born on March 10, 2011, without complications and was a beautiful, happy, and healthy baby girl. However, around her first birthday, her parents started noticing that she wasn’t hitting her key milestones. Around 26 months of age, little Elianna actually started regressing in major areas such as speech, sitting up, and walking. When Elianna was three years old, her family received the heartbreaking diagnosis that explained all that was going on. Elianna was diagnosed with Rett Syndrome.
Rett Syndrome is a complex neurological disorder involving the X chromosome, and is mostly found to affect girls. This disorder causes problems in brain function that is responsible for things such as moving, walking, speaking, eating, feeling, and even breathing.
Rett Syndrome affects practically everything in Elianna’s life. Elianna is non-verbal, is unable to walk on her own, has no functional use of her hands. She has a very specialized diet and has a 90% chance of developing a seizure disorder.
Elianna endures approximately two hours of physical therapy per day in order to keep her body from getting too stiff. As symptoms of Rett Syndrome go away while sleeping, this becomes the only time when Elianna experiences relief from her physical condition. Elianna will most likely need various surgeries/procedures in the future as she continues to grow.
Now, at 6-years-old, Elianna is an amazing, bright-eyed, engaging little girl. She loves her family and has a way of connecting the hearts of everyone she meets, without even speaking a word.
Elianna loves attending school at Jacksonville Elementary. Her family is excited for her to experience another year at Jacksonville, learning new things and making new friends along the way.
Elianna will be adopted as a Sparrow to Jacksonville Elementary. Students at Jacksonville will work hard to raise money for Elianna through sponsored community service and fundraising projects.
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