Condition: Cystic Fibrosis
City, State: OR
Club: Crater Academy of Health & Public Service Sparrow Club Service Hours: 3250
Date Adopted: 12/14/2011
Carly's Story:(1.12.12) Like many 15-year-old freshman girls, Carly Christensen is very social and enjoys spending lots of time with friends. Carly's fun and endearing personality makes it obvious that she loves life, even though she lives with a life-threatening disease called cystic fibrosis, that makes her life difficult on a daily basis. Cystic fibrosis, or CF, is an inherited, progressive, multisystem disease which primarily affects the respiratory and digestive systems. CF causes irreversible damage to the lungs and is also characterized by chronic malabsorption of nutrients, which leads to chronic malnutrition and growth issues. CF is a somewhat rare disease, affecting only 30,000 people in the United States. There is no cure for CF. In the lungs, CF causes the production of abnormal, thick, sticky mucus, which makes it extremely difficult to breathe. For Carly, life involves breathing treatments twice a day, every day, to fight against this. Carly also is on a substantial daily regimen of life-sustaining medications (close to 20 per day) which help her lungs, along with malabsorption and digestive problems. Within the last two years, Carly has underwent surgery twice in order to have polyps removed from her sinuses. Carly is no stranger to the hospital, having to spend several months a year in one. Due to concerns of cross contamination, Carly (like all CF patients) must spend all of her hospital time in isolation, which can get lonely. Because of this, Carly misses a lot of school but works hard to keep keep up, completing all assignments and taking all the same tests that are required of her fellow students. Carly admits that CF does ruin a lot of fun things in her life, but she does not let it hold her back from working hard to make the most of the life she has. Carly is humbled and very thankful to be adopted as a Sparrow by her peers at Crater Academy of Health and Public Service for the 2011/2012 school year.