Condition: Illocecal Crohn's Disease, POTS
City, State: Bend, OR
Club: Redmond Proficiency Academy Sparrow Club Service Hours:
Date Adopted: 3/03/2014
Braydon is a very bright and cheerful young man despite all that he has experienced in his lifetime. When he was 7 years old, he spent a lot of time in severe pain and was unable to eat. After a year of testing he was diagnosed with Illocecal Crohn’s Disease.
This illness if one of the most severe forms of Crohn’s Disease and is usually diagnosed in adults age 18-35. To find it in a child is very rare. Crohn’s disease is an autoimmune disorder that causes the body to attack its digestive system. This condition causes food to move through the body so fast, it cannot absorb anything. For this reason, Braydon has a failure to thrive and spends much of his time connected to a feeding tube giving him nutrition.
Braydon’s issues make it difficult for him to attend school. He has chronic inflammation that makes it difficult to eat and causes large portions of scar tissue to form. He has undergone one surgery to remove part of his colon and will likely have to have additional surgeries. He also gets ulcers anywhere throughout his digestive system, including his esophagus, making it difficult to swallow anything.
Braydon receives IV therapy every eight weeks to administer a drug similar to chemo that works to help lessen the effects of his disease. He does not have a healthy immune system and is often weak making it difficult for him to do what healthy kids do. He was recently diagnosed with POTS, orthostatic hypertension and chronic disease illness induced anorexia. He must be very careful not to do any activity that could increase his heart rate.
Through all of this, Braydon is a happy kid. He enjoys spending time with his family and his special little dog, Neiko. He loves science and art and, when he can, riding bikes and hanging out with his friends.
Sparrow cash raised for Braydon will help to pay for ongoing medical expenses and living expenses.