Benjamin B.

Condition: Spastic Quadriplegic Cerebral Palsy
City, State: Portland, OR
Club: Parkrose Middle School Sparrow Club Service Hours: 457
Date Adopted: 10/20/2016

Benjamin's Story:

When Benjamin was born premature at 31 weeks, he weighed only 3 pounds 2 ounces. On the first day of his life it was discovered that he had suffered a significant brain bleed called an Intraventricular Hemorrhage or IVH. In Ben’s case, the injury affected the brain’s ability to communicate with the muscles throughout his body, impacting all four limbs, his trunk and the muscles used in his face used for eating.

As a result of the brain bleed, Ben also has a complication known as Hydrocephalus, or “water on the brain”. This causes an obstruction in the flow of the spinal fluid creating swelling and dangerous pressure on the brain. In his first year of life, Ben underwent three brain surgeries to correct this but has remained stable since January 2015. This will need to be monitored throughout his life.

All of these brain injuries have left him with the lifelong risk for seizures. In February 2015 doctors found that Ben also suffers from an epileptic condition called Infantile Spasms but they have been able to control it with medication.

In August of 2015, he was also formally diagnosed with Spastic Quadriplegic Cerebral Palsy. At this point in his development, he is unable to sit on his own and it is unknown if he will ever walk independently. Ben is unable to form words with his voice but he can communicate with a book of special pictures and symbols.Despite an incredibly rocky start to life, Ben has an incredibly sweet spirit and easygoing personality. He enjoys adventures with his family and loves spending time with his two sisters who make him laugh. He loves Playdoh, to be read to, coloring and playing with Little People. One of the best things that has come from his physical therapy is his wheelchair and robotic stander.

Benjamin will be adopted as a Sparrow to Parkrose Middle School. Students will work hard to raise money for Ben through sponsored community service and fundraising.


Because of Ben
Because of Ben Because of Ben