Condition: Plagiocephaly, Torticollis
City, State: Madras, OR
Club: Crook County Middle School Sparrow Club Service Hours:
Date Adopted: 10/01/2015
Baby Titan’s journey started earlier than his parents, Chris and Teresa had originally expected. He was born a month early by way of an emergency C-Section and immediately diagnosed with torticollis as a result of a shortened collar bone. Doctors also noticed that Titan had a flat spot on his head. His parents were advised to try different sleeping position to round the head back to normal. After a couple months, the flat spot was getting worse. Titan was diagnosed with Plagiocephaly, or flat head syndrome at two months and was referred to Early Intervention at the same time.
The family recently began receiving care at the OHSU Craniofacial clinic in Portland and have had to make numerous trips in the last year. Titan’s doctors were concerned that his flat spot on his head was not improving. They stressed the importance of beginning helmet treatment immediately, but their insurance company denied their claim.
Titan just recently received his helmet and the family has begun the process to correct Titan’s condition, but now has been diagnosed with developmental delays and his hearing and communication are strong areas of concern for doctors and are still being diagnosed and evaluated. Titan also has had multiple seizures in the last month and has caused area for concern with the family and doctors.
Now at almost a year old, Titan has begun helmet, physical, occupational and speech therapies to get stronger and develop properly.
Although Titan has had a tough journey so far and a long road ahead in diagnosis and treatment, he loves everybody and is very patient. He also, loves his big brothers very much and his family is there for him every step of the way!
Titan will be adopted as a Sparrow to Crook County Middle School in Prineville. Students will work hard to raise money for Titan through sponsored community service and fundraising projects.