Mason J.

Condition: Cerbral Palsy, Hydrocephalus
City, State: Bend, OR
Club: Miller Elementary School Sparrow Club Service Hours:
Date Adopted: 2/09/2017

Mason's Story:

Mason was born a healthy little boy on August 10, 2011. He was growing and progressing well. One morning, at five weeks old, his mother, Tashina, was rocking him when he began to turn pale and lethargic in her arms. As she was preparing to take him to the hospital, he stopped breathing twice.

Mason was rushed into the ER. It was not long before they received a diagnosis. Mason had a condition known as coarctation of the aorta. His aortic duct had failed to close properly after he was born, and the artery was damaged. When the duct finally did begin to close, much later then it should have, his heart wanted to stop working.

Mason needed heart surgery as soon as possible. He was flown to Doernbecher Children’s Hospital in Portland. Due to the pressure changes and his extremely high blood pressure, he had two brain hemorrhages as well. Doctors had to work to stop the brain bleeding first before they could perform any heart surgery. Mason went into a coma and there was so much blood in his brain that they couldn’t tell the extent of the brain damage. He had three blood transfusions during this time as well. Finally, after 2 weeks, they were able to perform the surgery to repair his damaged heart.

After three long weeks in the hospital, Mason slowly began to come out of his coma. After enduring 32 days, a feeding tube placement, 4 brain surgeries and open heart surgery, and a stomach infection… Mason was able to come home.

Mason has come a long way since then, but most recently he has dealt with hip dysplasia. He has surgery on his left hip in September 2016 and battled 3 infections after that surgery. He will have the plates and screws removed in September 2017. And will most likely need the same surgery on his right hip in the future.

At 5 years old, Mason still has a feeding tube for all liquids and medications, because he can’t drink anything by mouth. He can eat solid foods now and sleeps well at night. He is blind in his right eye but has full vision in his left eye. He has also learned some sign language, which is helpful since he is non-verbal.

In spite of everything he’s been through, he is a happy little boy and has the greatest laugh! He brings so much joy to his family and the people he meets. He loves reading, water color painting, music, and playing with his cars and trucks. He also loves to ride in the car… and go to the park when the weather is nice.

Sparrow Cash raised for Mason will help with ongoing medical expenses, travel to hospitals in Portland, a wheelchair ramp into the home, a wheelchair ramp for the van, and everyday living expenses. Students at Miller Elementary School will “earn” Sparrow Cash by completing a minimum of 256 hours of sponsored community service.

sponsor(s):

2016 Swinging With the Stars Dancers
2016 Swinging With the Stars Dancers