Condition: Vesicoureteral Reflux, Ataxic Cerebral Palsy
City, State: Central Point, OR
Club: Logos Public Charter School Sparrow Club Service Hours: 1348
Date Adopted: 11/03/2014
In January 2011, little Layla greeted her eagerly awaiting parents, but in a much quieter manner than most babies. Layla didn’t cry or whimper…she didn’t even kick. Her calm presence was alarming. When Layla was three months old she had her first MRI, but the results were normal. It wasn’t until she was getting vaccinated at four months old that she let out her first wail. Layla’s parents took her to a neurologist where they discovered she had hypotonic (weak) muscles. At four and a half months old, Layla contracted a urinary tract infection and doctors found she had stage four Vesicoureteral Reflux (VUR), a condition that causes urine to flow backwards, damaging her kidneys. When she was almost two, she had her first bladder surgery. Only four months later Layla was back in surgery, but this time for her eyes. Because of her weak muscles and tight optic nerve, her eyes turned inwards. Surgery can only temporarily correct this though, so Layla will need more surgeries on her eyes. Layla also suffers from ataxic cerebral palsy, which causes her to fall down a lot and have trouble feeding herself. This summer Layla began to have seizures and was diagnosed with complex partial epilepsy. She will have to take medication daily to control the seizures and will continue to see a neurologist.
Because of Layla’s condition, she has weekly physical and speech therapy. She frequently sees her doctor and travels yearly to Portland for ultrasounds.
Even with all Layla has been through, she never complains and she never gives up. She has a gentle, loving spirit that wins the hearts of everyone she meets. And although Layla has been through a lot, she is absolutely fearless and loves doing anything fast and dangerous! One of her favorite things to do is ride on her daddy’s motorcycle. She also enjoys being in the water.
Layla will be adopted as a Sparrow to Logos Public Charter School. Students will work hard to raise money for Layla through sponsored community service and fundraising projects.