Condition: Mitochondrial Disease
City, State: OR
Club: Summit High School Sparrow Club Service Hours: 324
Date Adopted: 9/19/2011
Kelsey's Story:(11.11.11) Kelsey is a beautiful 3 year old little girl with a smile that lights up the room. She loves animals of all kinds, loves to swim and enjoys playing with her Littlest Pet Shops. But life for Kelsey has not been easy. She was born 6 weeks early. At 10 months old, she developed a respiratory illness not typically seen in children that age. After spending 2 weeks in the hospital, she was able to go home. But suddenly, she began to regress. She stopped walking, talking and eating. Doctors said she had suffered a stroke while in the hospital and they weren't sure if she would ever regain her abilities again. Kelsey was quick to improve with her walking, suddenly regaining her abilities just 4 days later. Eating improved very gradually, and at 2 years old, she still weighed only 14 pounds. Speech has still not returned to the capacity it should be. The family moved to Bend in May of 2010 and Kelsey began to do a bit better. But, in June, she began having seizures and was referred to Doernbecher Children's Hospital in Portland for further testing. After undergoing genetic, spinal tap, and mitochondrial testing, Kelsey was diagnosed with a fatal mitochondrial disease which is slowly breaking down the cells of her body. The doctors do not know how advanced her illness is. There are so few people with this disease that they don't know how long she has, whether it be 6 months or 6 years. As of her last visit to Doernbecher, there are currently no lesions on her brain. Once these legions appear, she will have about 6 months left. The family is taking every step to live life normally for Kelsey. All they can do is to take as many preventative measures as they can to keep her as healthy as possible for as long as possible. Kelsey eats a very healthy diet and takes several vitamins to boost her systems. She tries her best to stay away from sick people due to her low immune system. Sparrow Cash raised for Kelesy will go to pay for ongoing medical care as well as the speech, physical and occupational therapy she goes through on a regular basis. It will also help pay for possible hip surgery that Kelsey will need to improve her ability to walk.