Condition: Tufting Enteropathy
City, State: OR
Club: Summit High School Sparrow Club Service Hours: 583
Date Adopted: 10/19/2010
Jackson's Story:(12.10.10) Jackson looks like a beautiful baby boy of 7 mo old. He is smiling and happy and loves to be around people. To look at him, you would never know that he is a very sick little boy.(12.10.10) Jackson looks like a beautiful baby boy of 7 mo old. He is smiling and happy and loves to be around people. To look at him, you would never know that he is a very sick little boy. Born April 4th of 2010, the doctors noticed right away that Jackson was having trouble breathing. He was immediately placed in the NICU where doctors found that he was born without nasal passages, a condition called choanal atresia. His parents were told that babies with this condition usually also have anal atresia as well, and Jackson did. The family was immediately sent up to Doernbecher Children's Hospital in Portland where they began what would turn out to be 80 days in the hospital. Jackson underwent numerous surgeries to correct the problems with his nasal passages and his bottom. While there, doctors also found that he had a malrotation of his small intestine. When doctors performed the surgery to correct that problem, they decided to take a biopsy of the area as well. What they found was that Jackson also suffered from a condition known as Tufting Enteropathy. Basically, his intestines do not work. Now his parents, Dan and Emily were faced with some tough decisions. They had three choices � IV nutrition where he would be fed through an IV permanently, a small bowel transplant that currently has a 65 percent chance of success, or comfort care that would mean a shortened life. At this time, Jackson is on IV nutrition 16 hours a day. He has constant diarrhea because of his intestines inability to work properly. He has had to endure 6 surgeries in his short seven months and stands at constant risk of infection due to his IV lines. But right now, Jackson is a happy little boy who loves to look at books and watch sports on TV with his dad. The doctors say that he is not a candidate for a transplant at this time because he is to healthy. That is bittersweet news for his parent. So, they wait and watch in hopes that one day their little boy will be completely well. Sparrow Cash raised will help Jackson and his family with ongoing medical expenses and transportation costs for trips to Portland and CA. It will also help in preparation for a possible transplant in future months.