Condition: Benign Rolandic Epilepsy & Photo Convulsive Seizures
City, State: OR
Club: Tom McCall Elementary Elton Gregory Middle School Sparrow Club Service Hours: 256
Date Adopted: 1/20/2012
Emerson's Story:(1.4.12) Emerson is a lively 10 year old boy with spunk and energy and a smile that can melt your heart. But life has not always been easy for him. Emerson was a normal child meeting all the usual milestones right when he should. But at 2 ? years old, whenever Emerson walked by the big window in the living room, his eyes would begin to flutter and roll back and he would drop to the floor. Gradually, he began doing it other places as well and eventually would stay on the floor up to 45 minutes at a time. Emerson underwent an MRI and EEG. The MRI was normal but the EEG showed spike after spike of seizure activity. The neurologist gave him some medicine and told him to return in 6 months. Emerson kept getting worse. He would have upwards of 500 seizures in one day. He began to forget how to do certain everyday things, and would drop whenever he was in direct sunlight. Emerson was referred Emanuel Legacy Hospital in Portland. There they began a 48 hour EEG to try to determine the problem. He was diagnosed with a partial complex seizure disorder and epilepsy. He was given medications to help. Eventually, on July 7, 2007, he had a vagal nerve stimulator implanted to help even more with keeping the seizures under control. Emerson was still having problems with the sun. Doctors had no answers and he was sent to a specialist in Seattle. Additional tests were performed and doctors found a certain color that helped Emerson with his seizures in the sun. Now Emerson has special glasses and a hat so that he can enjoy the sun and spend time with his family. He still must be under constant supervision because of his seizures, but his life has improved significantly. He is relearning all those skills he lost, including walking, talking, and reading. Emerson loves to spend time with his family including his older brother Mason and little sister Kellsee. He enjoys rodeo and anything associated with it, and loves to play basketball and soccer. Sparrow Cash raised for Emerson will help pay for ongoing medical expenses as well as opportunities for Emerson to learn and grow.